TWD: Why I’m Biking 50 Miles in the Tour de Cure

On August 27, 2014 by Oren and Cassie

On the last Saturday in September, I will wake up at a painfully early hour in Washington, DC. I will bike to Pennsylvania Ave, the starting point of the Tour de Cure. Not at the White House, but very close to it. I will say hi to my friends, take a sip of water, and eat a bagel with peanut butter. And then I will ride 50 miles with the Tour de Cure to raise money for diabetes research.

tour-de-cure-blood-sugar-book

RIDING IN THE TOUR DE CURE… BUT NOT FOR MYSELF

Here’s the thing. I’m not riding for me. I don’t care that I have to take an injection of insulin with every meal and one more at night – all into my stomach – to regulate my blood sugar. It doesn’t bother me that I have to prick my finger 1,000 times a day (ok, maybe only 6) to make sure I’m not too high or too low. And I’m not overly annoyed that I have to watch everything I eat and drink so that I don’t risk long-term damage to my health.

tour-de-cure-humalog

I’m ok with all of that. It’s amazing how fast you can adjust to major life changes when your health is at stake. I’m already used to the injections, the new diet, the blood sugar testing, and all of the other changes – small and large – that I’ve had to make ever since I was diagnosed. In Nepal. On Valentine’s Day.

Here’s what I’m not ok with.

RIDING FOR THE NEXT GENERATION

My doctor told me that I was probably genetically predisposed to diabetes my entire life. I just never encountered the trigger until I traveled. If I’m genetically predisposed, then there’s a good chance the children I hope to have will be as well. I don’t ever want my kids, or anyone else’s kids for that matter, to go through the fear and the worry I went through after my diagnosis. It’s one thing to have to deal with that at 31. It wasn’t easy, but I with the help of some great friends, I have been able to control my diabetes.

I can’t imagine going through that as a child. It’s terrifying to think about a doctor having to tell any young child that he or she is diabetic. That’s what I want to prevent. That’s why I’m raising money for a cure with the American Diabetes Association’s Tour de Cure. I don’t want any child ever again to hear the words I heard, when a doctor looked at me and said, “I’m sorry to tell you, my friend. You are diabetic.”

tour-de-cure-hospital

This was one of my first days in the hospital. I want to make it clear how much I hate IVs.

I don’t want anyone’s child taking injections with every meal, or testing blood sugar all the time, or worrying about their HbA1c. I know there are all sorts of new gizmos and widgets and gadgets that make everything a bit easier, but that misses the point. I don’t want to make it easy for kids to live as diabetics. Rather, I don’t want kids to live as diabetics in the first place.

THE TOUR DE CURE

As the name implies, the Tour de Cure is a series of bike rides across the country where teams and individual cyclists choose how far they want to ride and raise money for a cure. Riders with diabetes get a Red Rider jersey. There are rides all over the country. If you’re reading this and you don’t happen to be anywhere near Washington, DC, you can use this page to help you find your nearest ride.

3 WAYS YOU YOU CAN HELP

Naturally, this is the section where I ask for a donation to my team. I apologize for the inevitable. By the way, the team name is so clever, it warrants its own donation. Our team is Duck Phiabetes. It’s an awesome name! But that’s not where I’m going to start, because there are 2 other options.

tour-de-cure-50-mile-map

First, you can ride with us in the Tour de Cure. I know, I know. 50 miles is a long way to ride. There are shorter rides, but we’re very ambitious. So 50 miles it is. You can sign up for our team here. If you’re going to do this, please shoot me a note so I know!

Second, you can come cheer us on. At some point on this ride, I am going to get tired. I am going to ask myself why on earth I signed up for the 50-mile ride when there was a perfectly serviceable 13-mile ride that would’ve made the point just as well. I am going to want to get off my bike and take a nap. That’s where I need some help, and I think I speak for my team when I say we need some help. Line up at any point along the route and come cheer us on. Yell out “Duck Phiabetes!” or something along those lines and we’ll know you’re there. And if you don’t see us, just keep yelling it out until every rider passes. Make sure to cheer on every single Red Rider that passes you.

tour-de-cure-dc-highest-point

I am not looking forward to the climb to the highest point.

The final way to help is to donate to our team. Even the smallest donation helps, and we would truly appreciate anything you can give. Here is a link to the team page and donation site.

No matter which of these options you choose, thank you for everything!!

-O.L.

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6 Responses to “TWD: Why I’m Biking 50 Miles in the Tour de Cure”

  • My mother’s divorce was finalized on VD 1973. How appropriate. Too complicated to support you (wires cost $) but we will find the Italian analogue and donate 25€ to it. Good luck, and if you’d be putting olive-dill cream cheese and lox on that bagel, and if it were an “everything,” you’d be watching a middle-aged blonde in tears while waiting for a ferry.

  • Wishing you a smooth ride, Oren!

    My husband (Robert) worked with JDRF in Raleigh (we have no connection to Type 1 – just wanted to help.) The public has little knowledge of the complexities families deal with when their child is living with Type 1 Diabetes… Praying a cure is only moments away!

    • Thanks so much for the encouragement!! I’ve ridden 50 miles twice before, but that was a loooooooong time ago. This one will be very different for many reasons. I’ll be doing a video about the ride, so be sure to check back 🙂

      My prayers are right there with yours!

  • Oren and Cassie, I have a 10 year old granddaughter that has Juv. Diabetes. she was diagnosed at age 5, now has become a pro using her pump. I have supported JDRF for a long, long time and I wish to thank you for what you and all your friends are doing in support of Diabetes. Who knows, thanks to your efforts she may not have to use the pump for the rest of her life.

  • Great to come across your blog via twitter – I am also an avid traveler, and my sister (& roommate when I’m home) has had t1d for 20 years. We’ve ridden the Tour de Cure several times & it was our friend Mari that started the Red Rider program. Small world! Safe travels and I’ll be really interested to hear the kind of luck you have finding supplies around the world.

    • That’s so cool that your friend started the Red Rider program!! I will absolutely be riding in many more Tour de Cures in the years to come!

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